Resources for Children/Teens with MS

This page is a collection of useful sites and articles aimed specifically at children and teenagers with Multiple Sclerosis, and, also for their friends and family to help them understand the condition, and also to let them know they are not alone.

Although thought to be relatively uncommon, it is fast becoming clear that there is a gathering number of children and teenagers being diagnosed with Multiple Sclerosis around the world.

We hope to bring you as much information as possible with regards Paediatric MS.

If you are the parent of a child who has been diagnosed with MS, or a child/teen with MS we would like to hear from you.

Further Information

The National Multiple Sclerosis Society and the Multiple Sclerosis Society of Canada have come together to offer “Young Persons with MS: A Network for Families with a Child or Teen with MS.” in North America.

The network provides families living with a child or teen that has been diagnosed with MS the opportunity to connect with other families by offering multiple program options. The network targets two distinct populations:

Children with MS (18 or younger) residing in the home of their parents or guardian. Parents of a child or teen with MS

The network provides a variety of programs to meet the needs of these families.

Education:
The network provides educational programs and written materials for children and their parents about childhood MS. One way to get involved is to participate in the quarterly teleconferences offered to parents.

Information and Referral:
Parents can contact their local chapter to learn more about MS and resources available to them. To learn more about the network or to get information more specific to childhood MS, parents may use the toll free number.

Emotional Support:
Families can gain emotional support through the different programs offered by the network as well as local support groups offered by the chapter.

Connecting Families:
Through the network, parents can join an email group where they can share with other parents their concerns and information as well as develop a support network.

For more information or to register for the Network for Families, please call
1-866-KIDS W MS (1-866-543-7967)
or Email: childhoodms@nmss.org

For teens (ages 13 to 17) who have MS, or who have a parent or guardian with MS. We encourage you to invite your parents to participate here, too.

How to register:

• Go to http://www.msworld.org/
• Click on "sign up for MSWorld" at the top of the page
• Read and agree to the Forum/Chat rules
• Complete the registration information then click on "Complete Registration"